I’M GOING HOME TODAY!

Hello readers,

I have already written this post but it disappeared into thin air so here I am writing it again.

I’m not even going to mention what’s happened in London this week because I’m sure you’ve all heard/read about it already.

I’m excited though because I’m going home today for the first time in 8 weeks, you better be excited because I am! Not only do I get to see Layla and celebrate her 21st birthday with her (even though her birthday was in February) but I get to see my family and celebrate Mother’s Day with Queen Jackie and we’re going to have a lovely day together.

And to make going home even more exciting, KIRSTY IS HOME ON SUNDAY, for the first time in 7 months. She’s home from Australia, although she’s only home for two weeks and then she’s going back down under because that is where she’s decided she wants to spend the rest of her life which I’m fine about, honestly, it’s fine! No, but seriously, I’m very happy that she’s settled there. I mean FaceTime and phone calls are all well and good but there is nothing better than sitting in the pub with a pint and your girls (Kirsty, Nia, Jess and Loz).

Today’s post is going to be very short because that’s all I’ve got to say really. Except my wonderful Daniel may have a chance of performing at the Isle of Wight Festival and he really needs your votes to secure his place. I know he’s really appreciate your vote so follow the link. https://hotvox.co.uk/artists/daniel-jacklin

And before I go I’d just like to mention a very special man who sadly lost his battle with Cancer last week. Jan Horsey was what I like to call the definition of a legend. He was always happy to see you and always excited to hear about your day. I’ll never forget our little handshake and his amazing hugs and my thoughts are with his beautiful wife, Rhian and his beautiful girls Jess, Billie and Poppy sending my love and biggest cwtches. Rest in peace you amazing man, 15.03.2017.

Please continue to like and share my blogs, I really appreciate it and I’ll speak to you soon.

Lols xx

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My friends are better than yours!

Hello my people,

I hope you’ve all had a good week and did a good deed of some form after last weeks post!

Let me just get one thing straight before I continue with this post. My friends are better than yours. Okay, now that we’ve got that out of the way I will explain why/what I mean by that.

Now, myself, Shelley and Beth met at the haven that is, The Village Hotel Cardiff. And they have become, over the year I’ve known them (although it feels like forever), to be two of my favourite ladies in the world. They’re both such amazing women who are so super funny, and bubbly, and friendly, and kind, the list goes on but they are all those things and more!

Since moving to London we’ve been talking about them coming to visit and doing a road trip up here for a couple of days but so far, haven’t got around to it for many reasons. BUT THIS WEEK THEY CAME AND SURPRISED ME!!

On Saturday morning Dan was acting really shifty after we woke up. We’d already agreed that he would go to Tesco in the morning and get some bits for breakfast, but when we woke up I saw that he’d received a message on Facebook. He hid it straight away and asked if I had seen it, which I hadn’t. When I asked what it was about he told me not to worry and that when he went to the shop he had to pick something up. Which again, was very strange, since the Tesco near me doesn’t have a post office, so he couldn’t have ordered anything, and I couldn’t remember buying anything online.

Anyway, he said he was going to go in an hour or so, which was fine with me. An hour went past so I asked when he was going to go and he said he was going to leave ‘in a bit’. But then his phone buzzed again and he was up like a shot with “I’m going to the shop!”. Which was weird, again.

Once he’d left I went into Lily’s room to explain the weirdness. About 10 minutes later he came back into the flat and called “Babe?” expecting me to be in the kitchen but I was in Lily’s room instead. So I opened the door to see Beth and Shelley hiding either side of my front door.

It was THE BEST surprise and we had the best day wandering the streets of London. And that is why my friends are better than yours, soz.

Short and sweet again but I thought I would share this with you guys! Please like if you liked this weeks post and feel free to give it a cheeky share.
Speak to you soon,

Lols xx

Wednesday is the new Tuesday.

Wednesday is the new Tuesday I’ve decided, since the past couple of weeks I’ve failed to post on a Tuesday!

I didn’t really know what to write about this week and I was going through my website and realised I had two posts in my drafts. One I wrote in my first week of living in London and one I wrote a couple of weeks ago, which is kind of irrelevant now.

The title of the one I wrote in the first week of living in London was titled ‘Stay humble’. I still identify with this post because it rings true still. So here it is:

‘Londoners are angry people (casually generalizing all Londoners), most of them hate their jobs, or hate people, or hate crowds or hate something. An important thing for me moving to such a big and busy city was not to forget to be kind and to be humble. Being rude and angry gets you nowhere and won’t fulfil you at all which is why I’ve started to make a conscious effort to be polite and be kind to people, not that I didn’t do that before.

Now this sounds cheesy and weird but you never know what the power of a smile can do for someones day. Someone could’ve been given the worst news, or could’ve had a terrible day at work and just giving them a smile could lift them up, could make their day. So today (Friday, 16th of September) I took Layla to the bus station after an amazing three days of having her stay with me. On my way back through Victoria train station, i took my time, had a look in a few shops and did my first good deed of being in London. Today I donated £1 to a children’s charity. I noticed the collectors walking around the station and constantly being ignored or rejected by passers-by and I thought to myself, no one is in such a rush that they cannot stop for a couple of minutes to donate, or not donate but take a leaflet. Now I know most people will take leaflets and never look at them, but even taking it in the first place shows that you’re putting someone or something else before yourself. You’ve taken that two minutes to show that you care, even without donating.The second good deed of the day was while getting on the tube. A new Mum was simultaneously feeding her little boy and trying to board the tube and no one bothered to help her, so i grabbed her pram and offered to help, of which she was very grateful and I hope that made her day a bit happier.’

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This weeks post is very short indeed but short and sweet I like to think! Why don’t you do a good deed today and brighten someones day, your good deed could be sharing this post and giving it a cheeky like and a comment ;). I hope you’ve all had a lovely start to the week and continue to have a good one.

Speak to you soon.

Lols xx Continue reading

Sometimes it gets hard…

Aloha readers!

I’d like to start this weeks blog post just by thanking you all for the amazing response and feedback on last weeks post, it means so much to me. It was my twentieth post believe it or not and I had the most reads since starting my blog which made me beam with joy!

Another thing, before I explain the title, attached at the bottom of this post will be a video that I’ve started making every month, inspired by one of my closest friends Sarah. It’s a video compiled of short clips of my favourite parts of the month and I’d love it if you could give it a watch.

The past week and a half have been a little bit of a struggle for me and I’ll tell you why. I’ve held back from writing this on my blog because it’s something I didn’t really want to be linked to my blog. Because if you’re not a close friend or relative of mine you wouldn’t know, and my blog was my ‘normal student’ bubble. When the truth is, I’m really not.

“Oh my God, she thinks she’s so special and individual compared to everyone else”. No, I don’t, I really really don’t because I know I’m not like everyone else. In fact I’m one of 3 in a million. Why? Because 5 years ago, in the May of 2012, I was diagnosed with an extremely rare muscle condition that affects only 3 in every million children in the UK a year. It’s called Juvenile Dermatomyositis (JDM) and it’s an auto-immune disease. Auto-immune diseases are the type that are triggered by your own immune system, which means that your body essentially attacks itself, in my case, my body eats my muscles for dinner. Luckily after 5 years of past and ongoing treatment my JDM is no longer active. This means that my body isn’t currently eating my muscles.

Now, this doesn’t mean that I don’t still suffer with symptoms. When I was at my worst back in 2012 my body was in so much pain and I was so tired all the time that I was in a critical condition and suffered severely with exhaustion. I’ve never experienced anything like it, and not to sound arrogant, but the likelihood is a large percentage of you never will.

Sometimes living with an invisible illness is hard, of course it is! Because the bottom line is, if you don’t have to deal with it you won’t ever understand that when I say I’m tired, very rarely am I the ‘normal’ amount of tired, when I say I’m aching, my body isn’t aching the ‘normal’ amount. It feels like when you lay down after a long, busy day and you feel your muscles finally relax. You feel them sink into your bed or sofa and drift away, mine sink into my bed usually and continue to sink until it’s painful to lie down. When I say I’m feeling ill, I’m not just the ‘normal’ amount of feeling ill because if I’m brutally honest, I don’t know what fighting fit feels like anymore. It’s one thing after another and there is always something going on inside me. Well that’s what it feels like anyway.

Sometimes it’s hard, when the world can’t see that, it’s hard.

Friend: “Why weren’t you at the pub last night?”/ “Why aren’t you coming to the pub tonight?”.

Me: “I’m so tired.”

Friend: “Oh come on just come for one!”.

Me: “Nah I’m really okay, I just want to go home and go to bed.”

Friend: “Okayyyy…”.

What I really want to say most of the time, and I have started to recently is being brutally honest, because 1. honesty is the best policy and 2. people aren’t going to understand anyway so I might as well. What I want to say most of the time is “I can’t think of anything better than going home, putting the kettle on, having a nice long shower, getting into bed, taking two ibuprofen and falling to sleep!”. Because that is the honest truth. If I’m going to be up from 7:30, taking an hour to travel to uni to get there for 10 and being there until 6pm, I just want to go home and I hope sometimes people understand that.

To explain the title, which so far I haven’t done very well, this past week and a half have been hard. I receive medication through an IV drip every eight weeks and I’ve had such a busy eight weeks that I’ve constantly been aching or in pain or so tired. It’s hard because everything that’s making me feel this way is invisible.

I’ve made this sound like every day is so incredibly difficult to me, it’s not. Because I have days where I feel ‘normal’ to my standards and I can keep up with everyone. Today I was dosed up with my eight weekly medication and I’m excited to be back on top form for the next eight weeks!

Just a reminder of the video I made this month that I thoroughly enjoyed making so please go and give it some time and attention. I hope you’ve all enjoyed your pancake day and made some super tasty ones (I know I did). Feel free to drop me a message or comment below any thoughts, they’re hugely welcomed and extremely appreciated as usual, and please share around if you’ve enjoyed reading the past few posts.

Speak to you soon.

Lols xx